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Sue Spiers's avatar

Hi Madison,

I love your insightful posts. I have just read this latest one and sadly have missed your discussion. I write because I can identify with connection and yet trying to keep some sort of balance, well actually maybe " balance" isn't the right word.

It's vital that I practice self care for my mental/ emotional and physical wellbeing.

I became unwell with M.E./ CFS, fibromyalgia 28 years ago which changed my world dramatically from ab ex paediatric nurse, mother of 3 to a mum who had to lay on the couch or in bed for a lot of the days. I could no longer drive.

I felt confused, in pain, exhausted all the time and guilty because I wasn't able to be the wife, mum I had expected to be.

Fast forward to now and after a severe relapse landed me in bed for most of the time 10 years ago and my children now grown and I am a nanny to 2 delightful grandchildren.

Thank goodness for technology which has helped me to connect, find my tribe, learn a completely different way of mind set.

To NOT feel guilty about taking care,protecting my health.

I have difficult days, but now thanks to meditation, bhakti yoga, spirituality, mantra I have learned so much about what is best for my needs.

I could write more but I will leave it for now.

Socially I am very isolated in person, but I fo connect via Zoom. Life is still day to day living the best life I.can manage and " trying " to avoid crashing.

But I write haiku, read a lot of poetry. Substack is another medium in which I can feel.connected.

I.miss walking out in nature and having a dog but I am taking each daybas it comes.

Thank you for reading if you have.

Namaste 🙏 ✨️ 💖

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